A journey through uncertainty

I wanted to share some of the interesting, challenging, rewarding and positive things that I have been through. I wanted to share the things that have helped through the difficult times and above all the positives that can come from a situation that may not feel in any way positive at the time.

Above all this is about looking forward and making the best out of anything that life throws your way. Everyting happens for a reason and there is no 'bad experience' just an experience that happens and teaches us something new that we can learn to deal with.

Thursday, 16 September 2010

This always confuses people...........



Right, well, Izzy has a wheelchair. It arrived a day after she broke her leg a few years back, it was ordered before this event happened and arrived by coincidence, which was a blessing as she was getting to heavy for me to carry and too tall for a buggy.

With her leg in plaster and shiny new wheels she quickly was able to manoeuvre it around, negotiating corners and bends. I can only assume she had spent a great many hours observing her friends in wheelchairs and how they got about, because people we met would assume she had always been in a wheelchair as she was so capable getting about. This made some situations way less complicated, I could take her shopping and carry a basket as she followed me around (at great speed sometimes!) I had two hands free for the first time that i could remember. I must also point out that supermarket trolleys were almost impossible to fit her in to with those longs legs she has, partly due to her mothers genetics, but exacerbated by the Soto's syndrome (that I did not know about then). It also helped when we needed to get somewhere fast as her walking can be very slow and it saved my back-vital for my own mobility and caring for her.

So things were definitely helped then and mobility issues were more straightforward. However, Izzy still uses a wheelchair, sometimes she gets tired, sometimes nervous. She has poor depth perception, so although her functional eyesight seems ok, she cannot always identify the ground and differing levels and textures. She also has nystagmus which affects the way she sees things. It is also difficult to determine her sight appropriately as when she has her regular eye appointments she is not really co-operative, the poor eye doctor cannot get anywhere near her and covering her eyes with her hands, or simply keeping her eyes closed, definitely does not help him...or me!

Anyhow, so she will use the wheelchair on longer trips, sometimes when she needs comfort and security in new surroundings and sometimes because she just wants to. The funniest thing about this is other peoples reactions. This occurs by some when their only assumption of needing a wheelchair is because she cannot walk. So, imagine their faces when Izzy will get out of her chair and want to push it, or overhear me encouraging her to get out and walk for a bit...it must look like some small miracle! the thing is if i had to explain each and every action it would take me forever and why should I? for me it is much more enjoyable to witness their reactions! Considering Izzy gets starred at enough for being herself, highly excitable, deeply expressive and completely unfazed by the reactions of others it come sometimes make a difficult or tiring situation much more pleasant!

Wednesday, 8 September 2010

Normal sevice is to resume....

Well, what a month it has been... I have not been on my blog for some time. The holidays were of course lovely, although filled with relentless sleep broken nights, followed by early starts and full days of entertaining Izzy. She is definatly developing her imagination and can at times (for very short periods) play on her own, but not for long! By the time I got her to sleep with of course some late nights I struggled to find a creative avenue in my brain that could function to actually write. But I am getting back there...

There have also been some major changes to the smooth running of my life. Chaos is generally present but I have been thrust in to new and at times an uncomfortable situation. This I will explain over time, but just wanted to say 'Hi' and and have not forgotten what I am doing, just yet again as those of you who know me well, am probly doing a little bit too much! That is though the way I like it.

This summer I have been to Weddings and more Weddings, all filled with amazing people and feel very lucky to have been part of them all, To Chris and Gemma, Ed and Claire, Georgi and Will, mwha xx I have been making art work including many many faries (which i will post here soon) travelling, entertaining, visiting, eating, drinking, laughing and enjoying time with Izzy (even though at times I felt the summer would never end- minus the weather!)

More things to follow.................